The video begins humorously as Anthony Carbajal, a photographer, dresses up in a neon bikini top and soaps up a car before being doused with ice water.
There are a lot of diseases that don’t get the support they need because there aren’t a huge number of people who experience them, so it’s difficult to raise awareness, difficult to find investors, basically people don’t have the emotional connection they do with something that a huge number of people deal with and the pharmaceuticals to treat them aren’t as profitable. Like, a friend of mine was at an MS fundraiser and the grim joke used to try to lighten people’s spirits for feeling like they weren’t raising as much money as they wanted was “Let’s face it guys, we aren’t cancer”
The ice bucket challenge has made people donate something like ten times as much to ALS this year than previous years. I know people are concerned about wasting water, but you’ll do a lot more good on that front if you take a stand against bottled water and soft drinks, particularly from companies like Nestle, than getting mad at people trying to raise awareness for an illness that let’s be honest not a lot of people were very familiar with before this. Just be responsible, be aware, and try not to take your frustration out on the wrong people.
Double reblog ‘cause this one has good commentary
The part about “let’s face it guys, we aren’t cancer” really hit home to me… I always want to say something like that but don’t know how to make it sound like I’m trying to be negative towards supporting cancer victims/survivors. I want to say things like “At least you CAN survive cancer,” but never want to deal with the backlash from that.
Imagine having the loss of motor skills like ALS, the involuntary movement of Parkinson’s and the change in personality and ability to make decisions like Alzheimer’s. This disease is called Huntington’s. There are also around 30,000 people in the US who have tested positive for HD. However, 150,000 people have a 50% chance risk of inheriting the disease.
I am one of those 150,000 people.
There is currently NO cure for HD, not even treatments. Researchers are working hard to try and help us attempt to be the last generation with HD.
Help support rare diseases by donations and raising awareness!!!